Thursday, July 26, 2012

He called me back & what are the next steps again?

So, all is well that ends well.  I got a returned call from Dr. Dentist...not going to call him Dr. Oz, not going to call him Dr. Wonderful.  Right now I'm uncertain as to exactly our relationship, so I'll leave it vanilla.

What was the result of the phone call?  Well, not exactly sure.  We are still in the same state as we were 2 months ago when we first met, however, now I have the geneticist's name in my hand.  I need to call to make an appointment with this geneticist and Dr. Dentist is writing him a letter.  I will receive a copy as well, which I'm interested in reading.

Really?  2 months to get a letter together?  And now it will probably take a few months to get in front of this new geneticist.  What is so frustrating is that we could have done this two months ago, which would mean I'd have the appointment coming up any day...not sometime towards the end of the year.  Oh well...none of this actually surprises me...I've been on this road for about 5 years now, I know how long things take, and what the drill is in patient advocacy.

So, yesterday I was down, down, down.  The tears wouldn't stop falling down, down, down.  Today is surely a new day and I feel it.  I feel it from all the love and support I have all around me.  There is no way I'd be able to continue this advocacy without it.

What picked me up yesterday?  Action.  Dr. Wonderful Dentist made us all these promises, who we were going to see, how this was all going to get figured out, how he was going to take care of it and drive it.  So, I kind of put my arsenal of specialists on the back burner, waiting to see what 'glorious' people we should visit instead.

So, I called them.  I called ALL of them.  And to give you an idea of patient advocacy & how long it takes to get in front of these people, here is what I got:
1) Genetics: November appointment
2) Endocrinology: September appointment
3) Developmental Pediatrician: This one is new...so I'm getting an intake form sent to me, which the practice will review and determine which doctor I should see.  I'll get a call from their scheduler, which will probably be a few months out from there

So, with the appointment to the geneticist, I also provided them an update on the falling out teeth.  Guess what happened then?  I GOT A CALL FROM HER!  Yes...I got a call from her.  How nice is that?  Super nice, that's what!  I know this is what Dr. Dentist is envisioning, because this is what doctor/patient relationships should be.  It's just when you overextend yourself, you can't do it, and that is where I believe Dr. Dentist is at right now, but maybe doesn't realize it.

I've dusted myself off, going to meet with everyone, even if there is duplicity in some of the specialists.  And I'm taking the keys back.  Heck, I have my license...why was I waiting for this guy to drive?

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