Sunday, April 22, 2012

Unsuccessfully successful

Now that I'm done with this IEP process for this year (with the exception of actually receiving the paper) and finishing an Assistive Technology evaulation...I am feeling like myself again.

Feeling like myself.  What does that mean?  Hmm.  I'm happy, really happy.  What else?  I'm less stressed, less under the gun, less feeling like I have to be justified in my forever quest to help my son.  But...I've realized, I'm still worried.

I'm Irish.  Technically speaking I'm adopted, so not sure how much 'Irish' my DNA is but my true self is 100% Irish, just like my parents.  Like my Irish Grandmas, I worry.  I worry about anything and everything.  I think I will post the stupid things I worry about just for a good laugh one day...and so my friends who read this can laugh with me while we are out together...some are really really stupid: Yellowstone's MegaVolcano eruption, anyone?

Well...at work we got a mandatory invitation for an 'organziational update' just for my team.  Shoot.  I love my situation right now; I love my manager; I love working from home; I love my volume of work.  I don't want this to change, but my head says it's okay - change will happen & we will rise to the occassion, we always do.  But the meeting was cancelled and nothing more was said (yet).  And even though I can tell myself it will end up okay, my core remains little twisted with worry...what is going to change?

My dear friend helped me confirm that I don't like anything that is not in my control, which is why I have this subdued panic about this re-org at work.  I shared with her some insight that I don't like anything that is out of my control, because I am afraid to fail.  Afraid to fail (stress: Afraid).  She didn't realize this, but she admitted it sure does explain a lot.  Yep, it sure does!

Fail...it's such a harsh word.  And who determines if I fail or not?  I don't have report cards anymore, so I don't have it documented in my face I didn't live up to someone's expectations.  I'm an upstanding citizen, so I don't have to justify my actions to really anyone in society.  I'm a good family member, so I know my family supports me in my choices and actions.  But...in my life, I haven't failed too much.  Don't get my wrong, this doesn't mean I'm perfect, oh not in the least!  I'm surely not perfect, but I feel I'm always in control, which makes me believe I can ensure success in what I'm trying to achieve (stress: believe).

I've convinced myself if I work hard and stay in control, I can guarentee success, or at least some success.  But, reflecting on all my recent 'successes', like the IEP, I really I think I've just become obsessed and overly focused.  Not to discount my hard work and my achievements, but I wonder if the amount of worry, work, research, or even advocacy I've spent on things was really just Irish luck & all my blessings.  I believe I'm so lucky and blessed, and I do say that often.

Shucks.  Are all the hours of preparation, research...obsession...fruitless?  Would the outcome have been the same?  Not everything in life should be in my control to guarentee my 'success.'  Knowing this I think will help me 'control' that constant worry, and hopefully this compulsion that if I just work harder things will come out in my favor.  I want to learn to color outside the lines and have it be okay.

I came to this realization Friday night while talking to Wonderful Husband about the evaulation that the child psychologist shared with us after the eldest's re-evaulation.  One of the doctor's points really stuck out to me; I'm always concerned how much our eldest doesn't want to put himself out there & try things...and I know it's from lack of self-confidence.  I asked him how we could help him to be more self-confident which he explained comes from success.  He commented that our eldest probably doesn't have a lot of success to pull from; basic success like interacting with people, success in playing things, doing things, walking, jumping...success in getting his point across with us when he wants something.  Okay - we can start to change that...and will.  Again...I will work harder at it and I will be successful...this time, I think it's okay to think this and start to drive myself.

Our conversation then changed a bit and that is when the realization hit.  I realized I'm not running a race this weekend with Wonderful Husband because "I'm not trained."  Another excuse could be that we need someone watch the kids...and bring them to dance class.  But really...trained = perfect.  Perfect, not flawless (don't get me wrong), guarentees success, I should probably say confidently prepared.  I realized I would like to run the races, but last time I did, my boyfriend at the time, won those races.  Yes, he was perfect at racing (not perfect in other ways).  But my point is, he didn't fail, he was justifiably successful.  My parents are even running this race in their upper 60s, and I'm really proud of them.  Why am I not not joining in?  Why am I hesitant to commit to running some pretty cool Chicago races with my fantastic cousins?

Summer of 2011 I ran a Warrior Dash, it was the best feeling on earth.  I wasn't prepared, I wasn't trained.  I wasn't supposed to run it, but the night before the race, took the place of my fantastic cousin who hurt herself rollerblading.  I didn't win it, I didn't finish in a pre-determined timeframe, but I DID it.  I was unpreparedely successful and it felt great.  I accomplished it with no measure of passing or failing.  I felt like I could do anything...wow, what confidence I had!

I have to break this cycle of needing not to fail.  I know if my job changes and I have to quit it's not failing.

Step one: Admitting it...Okay - I did that.

Step two: Commit to my fantastic cousin that I'll be her partner in a cool outdoor race in WI this summer.  Okay - done.  Now, we just need to register.

Step three: This is going to be HARD!  It may be laughable that it's hard because it appears such a stupid reason, but it's really hard for me to do.  I'm going to sign up for an art class this summer at the Arts Center.

Thursday night I was convinced to take Zumba this summer.  Exercise is supposed to help stress & well...weight loss will help me get in shape to run races, fit in my bathing suit...you get it...a whole cycle of not failing.  I had the Zumba class already marked on my calendar.  Now, instead of Zumba, which I'm pretty confident I can do at an 'acceptable' level (get it?  NOT fail), I'm going to instead sign up for an painting class.

I've always wanted to sign up for drawing or painting, but I am really not artistic and I stink at coordinating colors.  There it is again!  The new me rising up from inside yells: "Says who?"  So I'm going to make myself sign up for an art class and give it a shot.

Even if my artwork doesn't end up super great or match with any decor in my house, I'm committing now to hanging them up to remind me that I can be unsuccessfully successful.  I think I'll hang it up right next to the pictures from the 2011 Warrior Dash that are on my dresser, so I can look at them every day and remind myself that I have confidence and I can be successful, even if I am not fully prepared.

Tuesday, April 17, 2012

I won the IEP Lotto

I can now imagine what it's like to win the lotto.  You did it!  Oh my gosh, is it real?  I want to scream and skip around the block, giggling, yelling 'wahoo', and smiling from ear to ear...but I'm resisting, why am I resisting?  I'm not sure.

Is it too good go be true?  Did this really happen?  I walked out of a 3 + hour meeting that was rescheduled because the first one was cancelled with arguments, and we got everything we were looking for...without a fight?!  Did I miss something, or is this really real?

This HAS to be what winning the lotto is like.  I'm waiting for the revised IEP to be delivered to me, it must be the same as waiting for the Lotto to confirm your numbers and it to be valid.

I can't believe this!!!

I WON THE IEP LOTTO!!  Now, until we have it all signed and sealed, I'm going to remain calm...but let some of the early celebration begin.

OH Happiness.  OH Joy.  OH Thankfulness for the LOVE LOVE LOVE everyone has given to us.  OH Appreciation for the people who patiently listened to be obsess over this.  OH Lord, thanks for listening to all the prayers, not just from us, but from those who love our son.

OH WOW!  I WON THE LOTTO!!!!

Thursday, April 12, 2012

This is your job, but this is my life

I'm dealing with the oldest's IEP and I have a lot of personal support, which I'd cave if I didn't have.  I need the support and love, and help to keep up my confidence, so I'm posting a lot of updates about the challenges I've been facing with this IEP review on Facebook and it seems to be the only topic of conversation I'm having with anyone in my personal life who will listen.   I'm not sure if it's proper for me to do this on either front, but it's helping me retain the confidence I need to continue to advocate for my child.  I need to trust in myself that what I'm doing is right and just, but keeping that trust is really hard.

I awoke this morning with my head reeling about something put in the IEP by the school nurse.  Yesterday, she told me she "added a little something" to the document to expand on one medical record I provided to the school.  What she added is dangerous, in being that it does not reflect his cognitive, expressional, or physical history at all, and her own "conculsion" was taken from something totally out of context.  The risk to having her "little something" in his IEP is that if someone read it they could deduct that all the struggles that the eldest has could be attributed to this one physiological factor.  We are already working with an entorage of medical experts, and what she put in there is nothing that these specialists have ever noted as a concern.

In the IEP review process, there is one bully, or pit-bull, that is involved.  This woman is purely vindictive, I was even forewarned of this...and she has lived up to the rumors about her.  Having this medical wording in the IEP, which is a legal document in his school records, could give basis for someone with the wrong intentions, like this woman, to deny my son of services because adding therapeudic services would not help improve any of his struggles since they appear to be physiological.

I was so disturbed by this that I woke up this morning with a start, raced to the kitchen, pulled out the draft IEP document, and re-read what she wrote.  I was so upset that I couldn't even get the kids out of bed becuase I was crying about this, feeling like 'everyone' is pitting against me in this IEP.  My only saving grace was that my mom, who was a school nurse for years, would be over in 10 minutes and could help me by reading what she wrote and telling me if it was proper for her to include it.  My mom confirmed it wasn't right for her to do her own medical deduction or include it in the IEP.  She helped me get a plan in place that all I need to do is talk with the school nurse to have it removed.

The IEP meeting next Tuesday will be hard enough with this pit-bull personality leading the meeting on behalf of the school, and us advocating for more OT services for my son.  I want to try to get the medical portion of the document reworded so come Tuesday, it's a non-issue that we don't even have to discuss.

I need to convince myself that this school nurse did not add this wording to try to support the need to not add more services, just that she was trying to help (though I have not yet confirmed this...but I can't assume her intentions were bad).

What the school nurse doesn't realize is that by adding those 4 sentences to the IEP, even with assuming her intention was pure, has caused me huge heartache, sleeplessness, tears, anxiety, depression, lack of focus at work, an unhealthy obsession with this IEP, and left me feeling like the entire school is pitted against us.  I know she didn't realize this, since this is just her job.  And perhaps I'm insane...because how could 4 sentences make me feel so out of control and plagued with so many negative emotions?  Even though being a mom is a job, this is my life, and I have to live it in both the hours I'm awake and even through my subconcious in the hours that I sleep...it's unavoidable for me, I can't leave it at work or check it at the door when I return home every worknight.

Maybe I shouldn't take full credit for finding the ephipany during my sleeping subconcious the that we need to remove this text from the IEP for the risk of mis-interpretation.  Maybe I need to give credit to some higher power, like my guardian angel.  I can imgine my angel, whispering in my ear while I sleep that I need to check her part of the IEP again and have that text removed.  I'm not sure, but all I know is that this is my life and it's what I'm living 24 hours a day, 7 days a week, 365 days a year...so it's impossible to not be obsessed both in my concious and subconsious.

5 more days until the rescheduled IEP, and hopefully I will have closure (for now).

Tuesday, April 10, 2012

Bossy, Bossy, Bossy

Yesterday we had a lunch date at McDonald's with the eldest, myself, Grandma, and Grandpa.  After we ate our lunch and devoured those delicious fries, there were about 10 minutes left for the eldest to run around outside in the play land.

Already playing outside were two other kids, with their respective guardians sitting at the outdoor benches.  We sat on the bench next to one grandma.  Shortly after we arrived, the one child left, leaving only my eldest and this granddaughter.

Since it was an outdoor play land, I told the eldest to go ahead & run ahead, intentionally not telling him to take off his shoes for a multitude of reasons.

Eldest ran through the tunnels and down the slide, as he was propelled out of the tube, the Grandma next to us looked at me and said "He has to take off his shoes."  My reply "It's okay."  She didn't stop (as if she was the McDonald's play land police) "He has to take off his shoes so he doesn't hurt the other kids."  I replied something along the lines that it was still okay there is only one other kid in the area and they aren't on top of each other, clearly demonstrating I wasn't going to make him take off his shoes.

At this point, the eldest just melted into my arms, thinking he was in trouble.  While I was consoling him, I was telling him it was okay, he can still go.  Grandma and Grandpa were encouraging too.  This woman decided to pipe in again and try to make things better by telling him to go ahead too.  Finally the eldest felt better and continued to play.

This Grandma kept jumping into our conversation which we were not encouraging and by no means was promoting.  She also kept telling her Granddaughter from the side-lines what to do, and how to play with my son.  The funniest part of observing her behavior is that whenever her granddaughter would tell my eldest to "follow me", or "do this"...the Grandma would pipe up and say "Don't be so bossy!"

It's funny how the apple doesn't fall far from the tree.  And a lesson for me to be more aware of...the traits I don't want my kids to portray, I best watch that I'm not doing them as well.

Tuesday, April 3, 2012

A compliment will go far

Today I got some blood work done.  Not a fun job to have, a phlebotomist.  The woman today seemed very cranky.  She didn't smile, didn't say hello, wasn't cherry in the least.  Why should she be perky?  She has to prick people, work out of a hospital's basement, and deal with blood all day.

After she took my blood, I told her she did a good job.  She did.  The draw hardly hurt.

What is amazing though, is how this sour faced woman turned up with a big smile.  After that compliment, she told me to have a nice day and a great Easter.  Prior to that, she was the furthest thing from social and at my first thought had a face resembling a duck with a furrowed brow and sour-puckered lips.

Everyone likes to hear nice things.  A compliment goes far.

Monday, April 2, 2012

I have NO will power

I have no will power.  This is why I bite my nails, started smoking when I was younger, and still drink.

What?  Still drink?  I know...only 2 days ago I said I wasn't going to drink.  But last week (prior to my incident at the fish fry) I got a bottle of whipped cream flavored vodka, and man, it tastes good in a juice, orange juice, lemonade...yum.  So, last night, I poured myself a glass.  Shucks.  At least it was only one this time, but man...did I have some crazy dreams!

I justified this drink by the unbelievable stresses that are coming this week.  Hopefully one week from today, things will be back on track.

The ADHD of our eldest often brings us to tears.  Literally.  It's hard to manage the family with always intervening on daily life.  Maybe this is why it's nice to have a drink while I sit in front of the boob tube once the kids go to bed.  Yes...it is nice, but it is really just an excuse to not follow my resolution.

Yesterday, I finished up the logging and reviewing 6 years worth, in 2 binders, about 500 pages, of the eldest's medical, school, and therapy history in preparation for the IEP this week.  I got the document organization from 'From Emotions to Advocacy' - I highly recommend this book for any parent with a child who has an IEP (Individual Education Plan).

Today: I meet with his teachers to review the IEP and the full re-evaluation that the school team performed since January; this is a 'draft' review for the official meeting on Wednesday, but I'm not certain who will actually be at this preliminary meeting.

To top it off, my psoriasis has never been worse, so I have an emergency appointment with my dermatologist (I feel like a celebrity getting an 'emergency' appointment :) ).  Since my skin is so bad, I also had an appointment with my general practitioner...today I get the report if I have a gluten allergy.

Tomorrow: I meet with my counselor to check in with her and strategize about the IEP.  We also have the first tee-ball practice for the eldest...more stress if you can believe that, just from how he will act and participate.

Wednesday: THE IEP Meeting.  I'm preparing for the Director of Student Services to attend, this is the witch who I was orchestrating that interim Special Education Parents Advisory Council meeting with.  From what I've heard, I think she will be there with the intention to make my life miserable, and I would believe it.  After that council meeting, the Superintendent responded to my thank you note, but she didn't (I'm not surprised).

To make sure I'm really prepared for the 'legal' agreement on the eldest's school special services, I'm bringing a tape recorder, and my attorney.  I'm also not signing anything, since the next day I have another meeting...

Thursday: We meet with the private child psychologist who just did a separate re-evaluation of the eldest.  What timing!!  This is how the Lord looks out for me...we were already meeting with him and it just so happens to be the day after I get the official IEP.  So he offered to review it to ensure it looks like the eldest is getting what he needs...thank goodness for teams.  Again...teams - horray!

Monday: We meet with the pediatrician to review the eldest's ADHD program.  We have decided to go unmedicated, which is almost as terrible as medicated child.  Everyone agrees that we need something...hopefully she can help us with what that 'something' is...it's surely not just the 5 hours of therapy he receives every week alone.  5 hours?  Yes...5 hours - 3 hours privately, and 2 hours pulled out in school.  I don't even think I can do that.

Okay.  So I can admit I have SOME will power.  I did quit smoking and it's been over a decade, and like any true addiction I know I can't even try one cigarette because I'll get hooked again.  And I suppose it is will power to as dedicated and focused on this quest to help my eldest...and ourselves with all his special needs.  I'm also not going to let this psoriasis and stress get the best of me, which is why I already have a plan of action in place for myself.

So...with all this on my plate, is it so terrible to continue to have an occasional drink?  Until I get the call today telling me I'm allergic to alcohol, I think I'll keep doing it...in moderation.  Thank goodness the fish fry is done until next year :)